tag:blogger.com,1999:blog-9071323577655005981.post4277902141989701248..comments2023-10-05T13:56:08.666-07:00Comments on The Life I Didn't Expect: Back to the Bell & a Dose of RealityThe Life I Didn't Expecthttp://www.blogger.com/profile/12107885670720187160noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-9071323577655005981.post-63140835834021546192019-03-05T22:13:12.766-08:002019-03-05T22:13:12.766-08:00I'm sure the "chemo bell" ceremonies...I'm sure the "chemo bell" ceremonies ought to be downplayed until such time that even "Fourth stagers" could even ring it as if to one day say "GOOD BYE CHEMO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! HELLO CLINICAL TRIALS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!" Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9071323577655005981.post-49228433509542044732019-03-01T18:36:42.932-08:002019-03-01T18:36:42.932-08:00I wonder who's in the more "enviable"...I wonder who's in the more "enviable" position the individual diagnosed as "Stage IV from the get go" who may have endured numerous rounds of the "poison" or the chemo and some of the "burn" or the radiation and possibly none of the "cut" or "slash" or surgery or anyone at an earlier stage of BC who went the "whole 9 yards" with the "cut or slash, burn and poison" only to end up as "Stage whatever with lung, liver, bone or brain mets." I wonder what the "early stagers" would think if this scenario were to happen with the "Lone Ranger" theme cued and some oncologist like Dr. Stewart or Dr. Willem - Henning rushing into the room with an invite for their 4th stage patients to some clinical trial for some more "cutting edge" treatment that would possibly help us "kick the butt" of Metastatic Breast Cancer once and for all............................. I don't think that would happen but a fellow MBC'er could dreamAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9071323577655005981.post-59764554685113403772018-11-27T14:50:53.414-08:002018-11-27T14:50:53.414-08:00I just discovered and read your blog as it closely...I just discovered and read your blog as it closely mirrored the experiences of an old childhood friend who had MBC. I appreciate the honesty, the information, the wake up call to those of us with good health and the reminder to be e grateful for each day. Your blog is so many things - an awakening to those of us outside the MBC world lulled into the false sense that breast cancer is fairly minor and curable, informative about treatment - it is motivating for everyone to be patient with each other as what we see is not always accurate of what a person is going through. Could not agree more about people opening their eyes to what is truly important in life (and not endless social media posts about food and minor inconveniences). In short, thank you. Carry on the fight. There are many who stand behind you - including those you do not know. jkristylmnhttps://www.blogger.com/profile/06700133915294785523noreply@blogger.comtag:blogger.com,1999:blog-9071323577655005981.post-80504356281748024282018-10-07T20:36:08.980-07:002018-10-07T20:36:08.980-07:00Judit, I have been reading your post for a while ...Judit, I have been reading your post for a while now and thoroughly enjoy all your honesty and heartfelt words about what it really feels like to have this disease. I, myself, was sitting waiting to get my blood drawn, and the bell went off yet again. It is almost has if it doesn’t stop ringing in my head even though it had stopped five minutes before. I have never rang that bell and never will. I, too, am living with metastatic breast cancer and this is one of the best written entries in your blog that really was profound and I can tell you that you just voiced what all of us living with Mets have felt every time that bell rings. Thank you for being our voice!Stacy Rhttps://www.blogger.com/profile/06806558902663891784noreply@blogger.comtag:blogger.com,1999:blog-9071323577655005981.post-71745158025172920862018-10-04T20:58:28.666-07:002018-10-04T20:58:28.666-07:00I would never have thought of this, when my sister...I would never have thought of this, when my sister finished chemo I think we were the only ones in the clinic. But the moments leading up to that were full of tears. She didn’t want to go to clinic, and now I can only think of what it’s like to drag yourself there when you know you have to keep going as long as you want to live or as long as it’s working. Thanks for always adding perspective, and it’s impressive they found a statement to quote without profanity. But I love the swearing! And I agree with the poster above, maybe we can make something to smash Anonymoushttps://www.blogger.com/profile/12068197936181653001noreply@blogger.comtag:blogger.com,1999:blog-9071323577655005981.post-75235674603750582352018-10-02T21:09:34.345-07:002018-10-02T21:09:34.345-07:00This is a profound read. I want to be this survivo...This is a profound read. I want to be this survivor you speak of but reality is TNBC has a high reoccurrence rate in the first 5 years after treatment. My stage 3C diagnosis doesn't let me relax. I was one slippery cell getting past all 13 positive lymph nodes from stage 4. I do live in 6 month stages of fear. I want to hope for that 5 year finish line but who am I kidding? I'm no more special than you or any of the other MBC people. I'm a survivor in limbo. I didn't want to ring the damn bell because what's the point? I didn't want to ring the damn bell because I lost loved ones to this bitch cancer. I didn't want to ring the bell because I was finished with them pumping me full of poison but I was still very sick. Let's lose the bell. <br />Maybe a big smashable cancer sign and everyone can just give it a good smack.Anonymoushttps://www.blogger.com/profile/08221727547491338302noreply@blogger.comtag:blogger.com,1999:blog-9071323577655005981.post-65763401930052955142018-10-02T20:06:42.872-07:002018-10-02T20:06:42.872-07:00 I am glad you wrote this post. I didnt ring the ... I am glad you wrote this post. I didnt ring the bell when my treatment ended because I didnt see a bell and no one said anything. I would have without giving it a second thought. I was so happy to be done with treatment. After reading your post and thinking about what you said, how rude that would of been to ring that bell in front of others who never would get the chance. It’s like sitting in class when we were kids and seeing birthday party invitations being passed out to the special kids, and not getting one. <br />Gingerhttps://www.blogger.com/profile/17984884942609175990noreply@blogger.comtag:blogger.com,1999:blog-9071323577655005981.post-78174973975699144952018-10-02T20:03:01.451-07:002018-10-02T20:03:01.451-07:00Judit! Thank you for your blunt and honest post! ...Judit! Thank you for your blunt and honest post! I will not even pretend to know what you have or are going through in your life. I will however continue to read your blog. You are kinda like Ann Landers, but meaner and sassier! haha. You have taught me a lot about life and living. I may not really know you that well, but I am hooked on your raw and real views on life and living with MBC. I admire you, look up to you immensely. I want you to know that you really have had an affect on me and even posts like this make me stop and think. Thank you for being you!dhouldenhttps://www.blogger.com/profile/07471905978840865684noreply@blogger.com